THE JOURNEYS OF PATIENTS WITH AUTOIMMUNE DISEASES DURING THE COVID-19 PANDEMIC

Angela S. Abines, Erin Gray Ader, Kia M. Almirol, Liana G. Arcita, Corine M. Balan, Angelica F. Bengil, Kyla Mae V. Bernancio, Julla Hermierose R. Bustamante, Sofia Ysabel B. Cervantes, Angela Rose Dimen, Vivian Catherine C. Camano

Abstract


This study explored the lived experiences of individuals with autoimmune diseases during the COVID-19 pandemic, uncovering their emotional struggles, challenges, coping mechanisms, and the broader implications of their condition amidst a global health crisis. Using a qualitative research approach, data were gathered through in-depth interviews with five participants from the Philippines, aged 20-70, and analyzed using Colaizzi’s method. Four central themes emerged: Emotional Struggles, Challenges, Adaptability, and Coping Mechanisms. Participants revealed that stress, anxiety, and fear were pervasive emotional stressors that exacerbated their autoimmune conditions. These struggles were compounded by challenges such as physical limitations, adherence to strict routines, and dietary restrictions, all intensified by the pandemic's restrictions and protocols. Despite these difficulties, participants demonstrated adaptability through changes in habits, adherence to medical regimens, and positive mindsets. Coping mechanisms were largely influenced by support systems, including family, friends, and healthcare providers, which played a crucial role in fostering resilience. The findings highlight the interplay between psychological, physical, and social dimensions in managing autoimmune diseases, particularly during a global health emergency. Recommendations include integrating mental health support into standard care, promoting telemedicine, fostering community support, and leveraging technology to enhance patient care. The study emphasizes the importance of holistic interventions and public health policies that address both the medical and emotional needs of individuals with autoimmune diseases. Future research should investigate the long-term impacts of the pandemic on this population to inform more comprehensive and sustainable healthcare strategies.

 

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autoimmune diseases, COVID-19 pandemic, emotional resilience, coping mechanisms, holistic healthcare

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References


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DOI: http://dx.doi.org/10.46827/ejphs.v8i1.209

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