DISABILITY & QUALITY OF LIFE OF CHILDREN WITH SPECIAL NEEDS: AN INTERPRETATIVE PHENOMOLOGICAL ANALYSIS

Sudabeh I. Mihai, Kishor H. Mane, Sheelu Kachhap

Abstract


Children with disabilities are one of the marginalized and debarred groups of children who experiencing extensive violations of their rights but every individual have a right to live freely and with dignity on the earth including the special need children. It is the disability which keeps such inequality apart from the fundamental human rights. In order to make all children including children with special needs enjoy their basic rights as envisaged in the UN’s Universal Declaration of Human Rights, and lead a dignified, physically and mentally healthy and happy life, we have to improve their Quality of Life (QoL). Assessment of QoL is important because it gives voice to children. The present study focused on the QoL of children living with a disability. The study was conducted on special need children studying in special school of Varanasi city in India and Northwest Copenhagen city of Denmark. The method used is the phenomological method which involves participant observation with the help of detailed field notes and interviews. The study revealed that disability is lived and experienced in a very personal way by the children with special needs and disability tends to adapt a better QoL to overcome lack of access and failure.

 

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disability; quality of life (QoL); children with special needs

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References


Andrew F.M., Withey S B, 1976. Social Indicators of Well-being: American’s Perception of Life Quality. New York: Plenum Press

Bradshaw I., Hoelscher P., Richardson D., 2007. An Index of child well-being in the European Union. Social Indicators Research 80: 133−177

Cummins R.A., 1991. The Comprehensive Quality of Life Scale-Intellectual Disability: an instrument under development. Journal of Developmental Disabilities 17: 259−264

Donna R., 2012.A qualitative analysis into children’s experience of living with cerebral palsy. http://theses.gla.ac.uk/3509/. Accessed on 24 June, 2017

Emerson E., 1985. Evaluating the impact of deinstitutionalization on lives of mentally retarded, people. American Journal on Mental Deficiency 90: 277−288

Emerson E., Honey A., Madden R., Llewellyn G., 2009. The well-being of Australian adolescents and young adults with self-reported long term health conditions, impairments and disabilities: 2001 and 2006. Australian Journal of Social Issues 44: 37−51

George L.K., Bearon 1980. Quality of Life in Older Person: Meaning and Measurement, New York: Human Science Press.

Goode D.A., 1990. Thinking about and Discussing Quality of Life. In R.L. Schalock& M. J. Begab (Eds.) Quality of Life: Perspectives and Issues Washington DC: American Association on Mental Retardation

Kahneman D., Diener E., Schwartz N., 1999. Well-being: The foundation of hedonic psychology. New York: Russell Sage Publication

Layard R., 2005. Happiness: Lessons from a New Science, London: Penguin

O’Brien K.M., 2001.The legacy of Persons: Career counselors and vocational psychologist as agents of social change. The Career Development Quarterly 50: 66−76.

Marks N., Shah H., 2005. A Well being manifesto for flouring society. In F. Huppert, N., Baylis & Keverence (Eds.). The Science of well-being. Oxford: Oxford University Press.

Parameter T.R., Donelly M., 1997. An analysis of the dimensions of the quality of life. In R.I. Brown (Ed.), Quality of life for people with disabilities: Models research and practice Newbury Park, CA: Sage.

Schalock R.L., Brown I., Cummings R.A., Felce D., Matikka L., Keith K.D., 2002. Conceptualization Measurement and Application of Quality of Life for Persons with Intellectual Disabilities: Report of an International Panel of Experts Mental Retardation 40:457−470.

Sirgy M., 1986. A quality of life theory derived from Maslow’s developmental perspective. American Journal of Economics and Sociology, 45:329−342.

Universal Declaration of Human Rights, 1948. G.A. Res. 217A(III),U.N. Doc A/810 at 71

UNICEF, 2007. Promoting the Rights of Children with Disabilities. Florence: UNICEF Innocenti Research Centre.

United Nations Children’s Education Fund (UNICEF), 2007a. Situation Analysis of Women and Children in the Eastern Caribbean, Barbados: UNICEF Office for Barbados and Eastern Caribbean.




DOI: http://dx.doi.org/10.46827/ejse.v0i0.2066

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