QUALITY OF LIFE IN DEAF SIGN LANGUAGE USERS IN SOUTHERN BRAZIL PSYCHOLOGICAL DOMAIN

Israel Bispo dos Santos, Adriana Lacerda, Jean–Pierre Cagné, Giselle Massi, Ana Paula Berberian, Ana Cristina Guarinello

Abstract


Introduction: Deaf users of Brazilian Sign Language (Libras) constitute part of a population who need to integrate and interact with other people in society. However, many Libras users are not able to communicate through spoken Portuguese and this may have an impact on their quality of life (QoL). Few studies have investigated factors that influence the quality of life of Libras users. Objective: To verify how a group of Libras users, who lives in the South of Brazil, perceive their QoL, especially in the psychological domain. Method: 60 deaf sign language users participated in this study by completing two questionnaires: 1) WHOOQL-BREF instrument in Portuguese written language and/or WHOOQL-Bref - Libras and 2) Identification questionnaire. The research was conducted between, July 2015 February 2016. Results: From the 60 deaf sign language users, 20% were male and 40% female. The mean age was 28 years old, with high school and college education. Overall mean score on WHOOQL-Bref was 43.3%. The Psychological domain have a score (61,26%) Conclusion: Deaf sign language users have low results in the Psychological Domain when compared to hearing people research results. There is association between the results in this domain scores with lack of accessibility and interaction, negative thoughts and depression.

 

Article visualizations:

Hit counter

DOI

Keywords


deafness, psychological care, WHOOQL-Bref, quality of life

Full Text:

PDF

References


World Health Organization (2008) The Global Burden of Disease: 2004 Update. World Health Organization, Geneva, Switzerland.

Santos, I. B. (2017). A qualidade de vida de surdos adultos usuários de libras de Curitiba e região metropolitana. 2017. 76 f. Dissertação (Mestrado em Distúrbios da Comunicação) - Universidade Tuiuti do Paraná, Curitiba, 2017. Disponivel em https://tede.utp.br/jspui/handle/tede/1256 (acessed on 20/04/2019).

Chaveiro N. (2011). Quality of life of the deaf people that communicate through sign languages: construction of the LIBRAS version of the WHOQOL-BREF and WHOQOL-DIS instruments. 252 f. Tese (Doutorado em Ciências da Saúde) - Universidade Federal de Goiás, Goiânia.

Chaveiro N., Duarte S. B. R., Freitas A. R., Barbosa M. A., Porto C. C., Fleck M. P. A. (2013). Instrumentos em Língua Brasileira de Sinais para avaliação da qualidade de vida da população surda. Rev Saude Pub; 47(3):616-23.

Chaveiro N., Duarte S. B. R., Freitas A. R., Barbosa M. A., Porto C. C., Fleck M. P. A. (2014). Quality of life of deaf people who communicate in sign language: integrative review. Interface; 18 (48), 101-14.

Garcia R. R. (2016). Qualidade de vida da pessoa surda no ambiente familiar. 145 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de Goiás, Goiânia.

Fellinger J., Holzinger D., Dobner U. (2005). Mental distress and quality of life in a deaf population. Soc Psychiatry Psychiatr Epidemiol;40(9):737–742.

Fellinger J., Holzinger, D. & Pollard, R . (2007). Mental distress and quality of life in the hard of hearing.Acta Psychiatr Scand, 115(3), 243-5. DOI: 10.1111/j.1600-0447.2006.00976.x 5.

Fellinger, J., Holzinger, D. & Pollard, R. (2012). Mental health of deaf people. Lancet, 379, 1037–1044. doi:10.1016/S0140-6736(11)61143–4.

Kvam M. H., Loeb M., Tambs K. (2006). Mental health in deaf adults: Symptoms of anxiety and depression among hearing and deaf individuals. J Deaf Stud Deaf Educ 12: 1-7.

Samady W., Sadler G. R., Nakaji M., Malcarne V. (2008). Translation of the Multidimensional Health Locus of Control Scales for users of American Sign Language. Public Health Nursing; 25:480–9.

Munro L., Rodwell J. (2009). Validation of an Australian sign language instrument of outcome measurement for adults in mental health settings. Aust. N Z J Psychiatry; 43(4):332-9.

Graybill P., Aggas J., Dean R. (2010). A community participatory approach to adapting survey items for deaf individuals and American Sign Language. Field Method; 22(4):429–448.

Hintermair M. (2011). Health-related quality of life and classroom participation of deaf and hard-of-hearing students in general schools. J Deaf Stud Deaf Educ; 16 (2), 254–271.

Awasthi S., Agnihotri K., Chandra H., Singh U., Thakur S. (2012). Assessment of Health-Related Quality of Life in school-going adolescents: validation of PedsQL instrument and comparison with WHOQOL-BREF. [BVS]. Natl Med J India [Internet]. 2012 [cited 2013 Jan 12];25(2):74-9. Available from: http://pesquisa.bvsalud.org/regional/resources/mdl-22686712.

Nemček D. (2016). Quality of life of people with disabilities: differences in satisfaction with indicators and domains between active and inactive individuals. Physical Activity Review, v.4, p.62-71.

Nemček, D. & Kručanica, L. (2014). Satisfaction with health status in people with hearing impairments. In: Schickhofer P., Buzgó G. (eds.), International Scientific Conference Sports, Physical Activity and Health 2014, Comenius University, Bratislava, 2014; 185–191.

World Health Organization. (2014). Constitution of the world health organization. Basic documents (48th ed.pp. 1–19). Geneva: WHO. 12571729.

Oyewumi A. M., Sotade F. R. (2010). Stress Coping Mechanisms among Parents of Children with Hearing Loss in Ogun State, Nigeria. Int J Appl Psychol Hum Performance 6: 1405-1418.

Zazove P., Meador H. E., Aikens J. E., Nease D. E., Gorenflo D. W. (2006). Assessment of depressive symptoms in deaf persons. J Am Board Fam Med 19: 141-147.

Morere D. (2013) Measures of reading achievement. In: Morere D., Allen T. (Eds.), Assessing literacy of deaf individuals. Springer, New York, NY.

Kushalnagar P., Krull K., Hannay J., Mehta P., Caudle S., et al. (2007). Intelligence, parental depression and behavior adaptability in deaf children being considered for cochlear implantation. J Deaf Stud Deaf Educ 12: 335-349.

The WHOQOL Group. The development of the World Health Organization quality of life assessment instrument (the WHOQOL). In: Orley J., Kuyken W., editors. Quality of life assessment: international perspectives. Heidelberg, Springer Verlag, p. 41-60, 1994.

Instituto Brasileiro de Geografia e Estatística. Pesquisa nacional de saúde escolar. Rio de Janeiro: Instituto Brasileiro de Geografia e Estatística; 2016 https://ww2.ibge.gov.br/home/estatistica/populacao/pense/2015/default.shtm

fev. 15];

Almeida-Brasil, Celline Cardoso Silveira, Micheline Rosa; Silva, Kátia Rodrigues; Lima, Marina Guimarães; Faria, Christina Danielli Coelho De Morais; Cardoso, Claudia Lins; Menzel, Hans-Joachim Karl; Ceccato, Maria Das Graças Braga. Qualidade de vida e características associadas: aplicação do WHOQOL-BREF no contexto da Atenção Primária à Saúde. Ciênc. saúde coletiva [online]. 2017, vol.22, n.5, pp.1705-1716. ISSN 1413-8123. http://dx.doi.org/10.1590/1413-81232017225.20362015.

Hoffmann-Horochovski, Marisete T., Castilho-Weinert Luciana Vieira O. (2017). WHOQOL-bref para avaliar qualidade de vida como instrumento de apoio à gestão pública? Universidade Federal do UFPR Anais do Encontro Nacional de Ensino e Pesquisa do Campo de Públicas v. 2, n. 2.

Tamiozzo, D., Dallazen, F., Cruz, D., Windmöller, P., & Winkelmann, E. (2013). Qualidade de vida de pacientes submetidos à cirurgia cardíaca: Aplicação do Questionário WHOQOL-bref. Revista Contexto & Saúde, 11(20), 445-454. https://doi.org/10.21527/2176-7114.2011.20.445-454

Zöller Met, Archer T. (2015). Emotional disturbances expressed by deaf patients: affective deaf syndrome. Clin Exp Psychol 2:109. doi:10.4172/2471-2701.100109.

Fellinger; Holzinger D., Pollard R. Mental health of deaf people. Lancet,379, 1037–1044.(2012) doi:10.1016/S0140-6736(11)61143–4.

Black P. A. Glickman N. S. (2006). Demographics, psychiatric diagnoses, and other characteristics of North American Deaf and hard-of-hearing inpatients. Journal of Deaf Studies and Deaf Education, 11, 303–321. doi:10.1093/deafed/enj042.

Guarinello A. C. Claudio D. P. Festa P. S. V. Paciornik R. (2013b) Reflexões sobre as interações linguísticas entre familiares ouvintes: filhos surdos. Ciência e Cultura, Curitiba, n. 46, p. 151-168.

Mousley, Victoria L., Chaudoir Stephenie R. (2018). Deaf Stigma: Links between Stigma and Well-Being among Deaf Emerging Adults, The Journal of Deaf Studies and Deaf Education, Volume 23, Issue 4, October 2018, Pages 341–350, https://doi.org/10.1093/deafed/eny018.




Copyright © 2015. European Journal of Special Education Research (ISSN 2501 - 2428) is a registered trademark of Open Access Publishing GroupAll rights reserved.

This journal is a serial publication uniquely identified by an International Standard Serial Number (ISSN) serial number certificate issued by Romanian National Library (Biblioteca Nationala a Romaniei). All the research works are uniquely identified by a CrossRef DOI digital object identifier supplied by indexing and repository platforms.

All the research works published on this journal are meeting the Open Access Publishing requirements and can be freely accessed, shared, modified, distributed and used in educational, commercial and non-commercial purposes under a Creative Commons Attribution 4.0 International License (CC BY 4.0).