MAKING A CASE ON SOCIAL INTERACTION OF PARENTS OF CHILDREN WITH AUTISTIC SPECTRUM DISORDERS: A STUDY OF SELECTED COMPOUNDS OF LUSAKA, ZAMBIA

Kalumba Hellen Chalwe, Joseph Mandyata, Sophie Kasonde-Ng’andu

Abstract


Parenting a child is a challenging experience let alone parenting a child with a disability. The nature of the disability in a child goes with its complexity and it often puts parenting skills to the test. This study explores the experiences on social interactions of parents with Autistic Spectrum Disorder (ASD) in selected compounds of Lusaka, Zambia. The study used an interpretative phenomenological framework supported by qualitative approach. In-depth interviews were used to collect data. Non-probability criterion purposive sampling procedure was used to select participants. The sample size comprised of 10 parents with children with ASD. Qualitative data was analyzed thematically. The study revealed that parents had unique experiences in raising their children with ASD. These included; inadequate information on ASD; lack of support services; miscommunications between parents and children with ASD; stigmatization; lack of adequate sleeping time and negative attitude towards parents and their children with ASD. It was evident from the study that parents require supportive services including counselling to enable them to deal with the complexities that emanate from parenting children with ASD. In view of these the study recommended increased awareness on ASD; development, promotion and regular evaluation of intervention strategies parents use aimed at improving the daily lives of parents and their children with ASD in the study sites.

 

Article visualizations:

Hit counter


Keywords


social interaction; parents; autistic spectrum disorder; lived experiences

Full Text:

PDF

References


Barbosa, M. A. M., Chaud, M. N., & Gomes, M. M. F. (2008). Experiences of mothers of disabled children: A phenomenological study. Acta Paul Enferm, 21(1): 46-52.

Barrow, D. M. (2017). A phenomenological study of the lived experiences of parents of young children with autism receiving special education services. Unpublished doctoral thesis. Portland: Portland State University.

Central Statistical Office (2018). Census of Population and House- demographic survey report. Lusaka, CSO.

Central statistical Office (2015). Selected Socio- economic Indicators Report of 2015. Vol. 11 (2), Lusaka, COS.

Ceka, A., & Murati, R. (2016). The role of parents in the education of children. Journal of Education and Practice, 7(5): 61-64.

Chimhenga, S., & Musarurwa, C. (2011). Educating children with special needs: The African context. Retrieved from http://www.savap.org.pk

Cohen, L., & Manion, L. (2005). Research methods in education (4th ed) London: Routledge.

Creswell, J. W. (2014). Research design, qualitative, quantitative, and mixed methods approaches (4th Ed.). New York: Sage Publications.

Elford, L. M. (2014). Mothers’ lived experience of parenting an infant/young child with special needs in a rural context. Unpublished Masters Dissertation. Ontario, Canada: The University of Western Ontario, Canada.

Ferguson, G. (2014). Including children with disabilities in mainstream education: An Exploration of the challenges and considerations for parents and primary school teachers. Unpublished Masters Dissertation. Dublin, Ireland: Dublin Institute of Technology.

Gona, J. K., Newton, C. R., Rimba, K. K., Mapenzi, R., Kihara, M., Vijver, F. V., & Abubakar, A. (2016). Challenges and coping strategies of parents of children with autism on the Kenyan coast. International Journal of Rural and Remote Health Research, Education Practice and Policy, 16: 1-12.

Government of Swaziland, (2010). Ministry of education and training education sector policy. Mbabane: Websters Printers.

Green, S. E. (2007). We are tired not sad: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64: 150-163.

Heer, K. (2012). The cultural context of caregiving: A phenomenological exploration of the experiences of South Asian careers caring for children with intellectual/developmental disabilities. Unpublished Doctoral Thesis. United Kingdom: The University of Birmingham.

Holloway, I., & Wheeler, S. (2013). Qualitative research in nursing and healthcare. London UK: John Wiley & Sons.

Lazarevic, E., & Kopas-Vukasinovic, E. (2013). The role and place of parents of children with disabilities in inclusive education in Serbia. International Journal About Parents in Education, 7(2): 69-78.

Leach, D. P. (2015). A phenomenological study of the experiences of parents of a child or Children diagnosed with deafness. Unpublished doctoral thesis. Columbia, USA: University of South Carolina – Columbia.

Leedy, P., & Ormrod, J. E. (2010). Practical research (9th ed.). New Jersey: Pearson Education Inc.

Kasonde-Ng‟andu, S. (2013). Writing a Research Proposal in Educational Research, Lusaka, and University of Zambia.

Kothari, C. R. (2011). Research Methodology: Methods and Techniques. New Delhi: New Age International (P) Ltd. Publishers.

Mackelprang, R. W. (2010). Disability controversies: Past, present and future. Journal of Social Work in Disability & Rehabilitation, 9: 87-98.

Mandyata, J. M. (2015). School and community Partnership in Inclusive Education: An Evaluative Study of Selected Primary Schools in Kasama District of Zambia. PhD Thesis Unpublished. University of Zambia.

Mandyata, J. M. & Kamukwamba, K. L. (2018). Stakeholders’ Views on Use of sign language Alone as a Medium of Instruction for the Hearing Impaired in Zambian Primary Schools. International Journal of Special education, vol.33 (1), 62-76.

Matenge, B. (2015). An exploration of the lived experiences of mothers raising children with autism. Unpublished Masters’ dissertation. Cape Town, South Africa: University of Cape Town.

McIntyre, R., & Hennessy, E. (2012). Experiences of parents of children with attention deficit hyperactivity disorder. Dublin, Ireland: Routledge Taylor and Francis Group.

McMillan, J., & Schumacher, S. (2010). Research in education. A conceptual introduction. (10th Ed.) New York: Addison Wesley Longman.

McNally, A., & Mannan, H. (2013). Perceptions of caring for children with disabilities: Experiences from Care Givers. Journal of Positive Behavior Interventions, 9(3), 131–150.

Mungai, E. N. (2014). Challenges facing children with special needs in pursuing education in Thika sub-county, Kiambu County. Unpublished Masters’ dissertation. Nairobi, Kenya: University of Nairobi.

Neeraja, P., & Anuradha, K. (2014). Adjustment problems faced by children with learning disabilities impact of special education. Indian J.Sci.Res, 5(1): 77-81.

Okeke C. I. O. (2014). Effective home-school partnership: Some strategies to help strengthen parental involvement. South African Journal of Education, 34(3): 1-10.

Okeke, C. I. O. & Mazibuko G. F. (2014a). Inclusion and mainstreaming: Challenges faced Swazi parents of school children with special education needs. Int J Edu Sci, 7(1): 9-20.

Okeke, C. I. O. & Mazibuko, G. F. (2014b). The experiences of parents of school children with special education needs: An empirical study. Mediterranean Journal of Social Sciences, 5(15): 227-240.

Ökcün, M. Ç., & Akçin, N. (2012). A description of a mother’s play guidance for her child with autism in the process of playing by the rules. Journal of Research in Special Educational Needs, 12(2), 96–106.

Piskur, B., Beurkens, A. J. H. M., Jongmans, M. J., Ketelaar, M., Norton, M., Frings, C. A., Smeets, R. J. E. M. (2012). Parents’ actions, challenges, and needs while enabling participation of children with a physical disability: A scoping review. BMC Pediatrics, 12(177): 1- 13.

Reeja, M. R., & Sujatha, R. (2013). Lived experiences of mothers of children with Down’s syndrome in selected schools at Mangalore. Nitte University Journal of Health Science, 3(3): 87-92.

Reynolds, J. D. (2015). A view of parents of children with autism spectrum disorder through Maslow’s hierarchy of needs: A phenomenological study. Unpublished doctoral thesis. Lynchburg, VA: Liberty University.

Taderera, C. & Hall, H. (2017). Challenges faced by parents of children with learning disabilities in Opuwo, Namibia. African Journal of Disability, 6(0), a283. Retrieved from: https://doi.org/10.4102/ajod.v6i0.283.

Neely-Barnes, S. L., Hall, H. R., Roberts, R. J., & Graff, J. C. (2011). Parenting a child with an autism spectrum disorder: Public perceptions and parental conceptualizations. Journal of Family Social Work, 14(3), 208–225.

Thakran, S. (2015). Learning disabilities: Types and symptoms. International Journal of Applied Research, 1(5): 149-152.

Thwala, S. (2015). Challenges encountered by teachers in managing inclusive classrooms in Swaziland. Mediterranean Journal of Social Sciences, 6(1): 495-500.

Thwala, S. K., Ntinda, K., & Hlanze, B. (2015). Lived experiences of parents of children with disabilities in Swaziland. Journal of Education and Training Studies, 3(4): 206- 215.

Udoba, H. A. (2014). Challenges faced by teachers when teaching learners with developmental disability. Oslo, Norway: University of Oslo.




DOI: http://dx.doi.org/10.46827/ejes.v8i9.3881

Refbacks

  • There are currently no refbacks.


Copyright (c) 2021 Kalumba Hellen Chalwe, Joseph Mandyata, Sophie Kasonde-Ng’andu

Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.

Copyright © 2015-2023. European Journal of Education Studies (ISSN 2501 - 1111) is a registered trademark of Open Access Publishing Group. All rights reserved.


This journal is a serial publication uniquely identified by an International Standard Serial Number (ISSN) serial number certificate issued by Romanian National Library (Biblioteca Nationala a Romaniei). All the research works are uniquely identified by a CrossRef DOI digital object identifier supplied by indexing and repository platforms. All authors who send their manuscripts to this journal and whose articles are published on this journal retain full copyright of their articles. All the research works published on this journal are meeting the Open Access Publishing requirements and can be freely accessed, shared, modified, distributed and used in educational, commercial and non-commercial purposes under a Creative Commons Attribution 4.0 International License (CC BY 4.0).