COPING TRENDS OF PARENTS HAVING CHILDREN WITH DEVELOPMENTAL DISABILITIES: A LITERATURE REVIEW
Abstract
Having to take care of children with developmental disabilities can affect parents not only in their psychological well-being but also affect physical well-being. Taking care of a child with special needs can be a growing experience or it can become stressful depending on how a parent perceives the event. Depending on the cognitive appraisal and the person-environment interaction, parents can either engage in positive behaviours of dealing with the disability or indulge in poor coping behaviour which will have adverse impact physically as well as psychologically. The present article attempts to highlight the various ways of coping used by parents to deal with their children’s disabilities. Review of research papers suggests some clear differences between affected parents and non-affected parents on use of different types of coping strategies along with various moderating factors like education, income, social support available, socio-economic conditions, and type of coping used. There were also findings on how mothers differ from the fathers in their coping behaviours when dealing with disabilities.
Article visualizations:
Keywords
References
Alias, N. A. & Dahlan, A. (2015). Enduring challenges: the challenges of mothers in raising children with dyslexia. Procedia – Social and behavioral Sciences, 202, 107-114.
Aspinwall, L. G. & Taylor, S. E. (1997). A Stitch in Time: Self-regulation and proactive coping. Psychological Bulletin, 121(3), 417-436.
Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208-215.
Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personal and Social Psychology, 56, 267-283.
Chandramuki, Shastry, I. V. K. & Vranda, M. N. (2012). Attitudes of parents towards children with Specific Learning Disabilities. Disability, CBR and Inclusive Development, 23(1), 63-69.
Dabrowska, A. & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280.
Durban, J. M., Rodriguez - Pabayos, A. M., Alontaga, J. V., Dolorfino-Arreza, G. & Salazar, C. (2012). Coping strategies of parents of children with developmental delay: a quantitative analysis. Asian Journal of Social Sciences & Humanities, 1(4), 177-195.
Farheen, A., Dixit, S., Bansal, S. B., & Yesikar, V. (2008). Coping strategies in families with mentally retarded children. Indian Journal for The Practising Doctor, 5(5), 11-12.
Feizi, ANajma, B. Salesi, A., Chorami, M. & Hoveidafar, R. (2014). Parenting stress among mothers of children with different physical, mental and psychological problems. Journal of Research in Medical Sciences, 19(2), 145-152.
Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G. & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449–457.
Heiman, T. (2002). Parents of children with disabilities: resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14(2), 159-171.
Hussain, A., & Juyal, I., (2007). Stress appraisal and coping strategies among parents of physically challenged children. Journal of the Indian Academy of Applied Psychology, 33(2), 179-182.
Jones, J. & Passey, J. (2005). Family adaptation, coping and resources: parents of children with developmental disabilities and behavior problem. Journal on Developmental Disabilities, 11(1), 31-46.
Kalgotra, K., & Warwal, J. S., (June, 2014). Impact of disability and coping strategies among the parents of children with intellectual disabilities. Indian Journal of Applied Research, 4(6), 1-4.
Kamaruddin, K. & Mamat, N. (2015). Stress among the Parents of Children with Learning Disabilities: A Demographical Analysis. International Journal of Humanities Social Sciences and Education, 2(9), 194-200.
Khan, M. F. & Humtsoe, M. K. (2016). Quality of life of mothers having children with autistic spectrum disorders and learning disabilities. Journal of Physical Education Research, 3(1), 38-46.
Kumar, V. G., (July, 2008). Psychological Stress and Coping Strategies of the Parents of Mentally Challenged Children, Journal of the Indian Academy of Applied Psychology, 34(2), 227-231.
Laskar, A. R., Gupta, V., Kumar, D. & Singh, M. M. (2010). Psychosocial effect and economic burden on parents of children with locomotor disability. The Indian Journal of Pediatrics, 77(5), 529-533.
Lazarus, R. S., & Folkman, S, (1986). Cognitive theories of stress and the issue of circularity. In M. H. Appley & R. Trumbull (Eds). Dynamics of Stress. Physiological, Psychologcal, and Social Perspectives (pp.63-80). New York: Plenum.
Lazarus, R. S., & Folkman, S., (1984). Stress, Appraisal and Coping. New York, Springer.
Lyons, A. and Leon, S. (2010). The impact of Child Symptom Severity on Stress Among Parents of Children with ASD: The Moderating Role of Coping Styles, Journal of Child Family Study, 19, 516 – 524.
Miodrag, N. & Hodapp, R. M. (2010). Chronic stress and health among parents of children with intellectual and developmental disabilities. Current Opinion in Psychiatry, 23(5), 407-411.
Mitchell, D. B. & Hauser-Cram, P. (2006). The well-being of mothers of adolescents with developmental disabilities in relation to medical utilization and satisfaction with health care. Research in Developmental Disabilities, 29, 97-112.
Moawad, G. E. N. A. (2012). Coping Strategies of Mothers having Children with Special Needs. Journal of Biology, Agriculture and Healthcare, 2(8), 77-84.
Montes, G. & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: a population-based study. Pediatrics, 119, 1040-1046.
Moos R. H., & Schaefer J. A. (1993). Coping resources and processes; Current concepts and measures. In L. Goldberger & S. Breznitz (Eds), Handbook of stress: Theoretical and clinical aspects (2nd ed., pp. 234-57). New York: The Free Press.
Phelps, K., McCammon, S., Wuensch, K. and Golden, J. (2009). Enrichment, Stress, and Growth from Parenting an Individual with an Autism Spectrum Disorder. Journal of Intellectual & Developmental Disability, 34(2)), 133 – 141.
Pisula, E. & Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with Autism. Journal of Autism and Developmental Disorders, 40(12), 1485-1494
Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping and well-being in parents of children with autism: a multi-level modelling approach. Journal of Family Psychology, 22(6), 844–864.
Predescu, E. & Şipoş, R. (2013). Cognitive coping strategies, emotional distress and quality of life in mothers of children with ASD and ADHD—A comparative study in a Romanian population sample. Open Journal of Psychiatry, 3, 11-17.
Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S., Russell, D., et al. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics 115(6), 626-636.
Sajjad, S. (2011). Stress Faced by Pakistani Mothers of Children with Intellectual Disabilities and Its Impact on Their Family Life. Journal of the International Association of Special Education, 12(1), 71-78.
Scheier, M. F. & Carver, C. S. (1992). Effects of optimism on psychological and physical well-being: theoretical overview and empirical update. Cognitive Therapy and Research, 16, 201–228.
Seltzer, M. M., Greenberg, J. S., Floyd, F., Pettee, Y. & Hong, J. (2001). Life course impacts of parenting a child with disability. American Journal on Mental Retardation, 106, 265-286.
Sharief, F. (2014). Children with special need: care and family support. Journal of Humanities and Social Science, 19(10), 36-41.
Siah, P. C. & Tan, S. H. (2016). Relationship between sense of coherence, coping strategies and quality of life of parents of children with Autism in Malaysia: a study of Chinese parents. Disability, CBR and Inclusive Development, 27(1), 78-91.
Smith, P. M. (2003). You are not alone: for parents when they learn their child has a disability, parenting a child with special needs (3rd ed). Washington, DC: National Information Center for Children and Youth With Disabilities.
Tajalli, P., Hooman, H. A., Afrooz, G. A. & Bonab, B. G. (2011). A comparison of coping strategies used by mothers of children with/without ADHD. International Journal of Fundamental Psychology & Social Sciences, 1(1), 11.
Vidyasagar, N. & Koshy, S. (2010). Stress and coping in mothers of Autistic children. Journal of the Indian Academy of Applied Psychology, 36(2), 245-248.
Vinayak, S. & Sekhon, P. (2012). Parenting of Children with Learning Disabilities and their Siblings. Journal of the Indian Academy of Applied Psychology, 38(1), 84-92.
Wang, P., Michaels, C. A. & Day, M. S. (2011). Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities. Journal of Autism Development Disorder, 41, 783.
DOI: http://dx.doi.org/10.46827/ejse.v0i0.362
Copyright © 2015 - 2023. European Journal of Special Education Research (ISSN 2501 - 2428) is a registered trademark of Open Access Publishing Group. All rights reserved.
This journal is a serial publication uniquely identified by an International Standard Serial Number (ISSN) serial number certificate issued by Romanian National Library (Biblioteca Nationala a Romaniei). All the research works are uniquely identified by a CrossRef DOI digital object identifier supplied by indexing and repository platforms.
All the research works published on this journal are meeting the Open Access Publishing requirements and can be freely accessed, shared, modified, distributed and used in educational, commercial and non-commercial purposes under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
